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truly

チャンネル登録者数 1040万人

167万 回視聴 ・ 17722いいね ・ 2017/11/16

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AN 11-year-old boy with a rare form of dwarfism is one-in-a-million. Levi Krystosek, 11, has a rare form of dwarfism called Jansen Metaphyseal Chondrodysplasia, which affects the growth of bones and causes considerable pain, meaning he is only 38 inches tall. There are approximately only 30 known cases of JMC in the world, and five genetically confirmed cases in the US.

Follow Little Levi's Journey:
http://www.golittlelevi.com/
   / littlelevi1606  

Miracle Flights - "We have the cure for distance!"
https://www.miracleflights.org

Video Credits:
Videographer / director: Adam Gray
Producer: Nathalie Bonney, Ruby Coote
Editor: Marcus Cooper

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